Aug 282010

Mareike playing in hospital

Mareike playing in hospital

I’ve had a few questions asking how Mareike is and I promised an update. I figured this blog post would be best to get the general information out 🙂

Mareike herself is fine though slightly more clingy to mummy than normal, in part because she got to spent a fair chunk of 2 days with just mummy.

The prognosis so far is that she possibly has “Focal Epilepsy” which is a partial form of epilepsy. On the Wednesday Mareike had an EEG done where she was supposed to be being active and puffing lots, in part to try and trigger what might have happened.

When they looked at the results later they noticed some odd signals in her right occipital lobe. This coupled with a number of similar ish incidents over a year ago (some of you may remember my panicked Tweets/Facebook updates when she was between 1.5 & 2.5yo) and a couple of video clips of her being quite vacant and out of character (again from that time period) they are going to investigate further.

On Tuesday they will be doing an MRI scan, for which she will be getting a general anaesthetic, to see if they can see anything in there that might be a cause or trigger. She will then go see a Doctor a few weeks later for another EEG (about an hour) where they will repeat the under strain test and we will can discuss where we will go forward in terms of monitoring / treatment.

For now they are happy for her to carry on as normal, though maybe taking it slightly easier and we should keep an eye out for any unusual behaviour (like vacantness).

I won’t speak for Bob but I’m happy with how things are at the moment, we know there is something to watch for and there are steps being taken to investigate further. The care at Mariahilf in Hamburg) was great, as were the ambulance drivers who took us there as they waited for me to get to the Kindergarten to go with Mareike to the hospital.

Plus side for Mareike out of all of this, other than the extra time with just mummy, was that the ambulance staff gave her a rather cute & cuddly teddybear.

I'd love to hear what you have to say

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